MANAGING THE PARTICIPATION OF PEOPLE WITH DISABILITIES IN LARGE-SCALE R&D TECHNOLOGY PROJECTS: BEST PRACTICES FROM AEGIS AND CLOUD4ALL

R. Ignacio Madrid, Iván Carmona, Juan Bautista Montalvá Colomer

Abstract


People with disabilities are frequently mentioned as beneficiaries of participatory approaches during the research and development of technology, since their special needs and preferences can be unveiled and channeled through participatory techniques. However, there are some challenges affecting their involvement and sustained participation in large-scale R&D technology projects. This paper discusses some strategies to overcome these potential barriers, based on the experience of the authors in two large-scale technology projects funded by the European Commission: AEGIS and CLOUD4all.

Keywords


Participatory research, User management, Accessibility

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References


Aldred, R. (2008). Ethical and political issues in contemporary research relationships. Sociology, 42 (5), 887-903.

Ashok, M., & Jacko, J. A. (2009). Dimensions of user diversity. In C. Stephanidis, The universal access handbook, pp. 1-15. Philadelphia: Taylor & Francis.

Barnes, C. (2003). What a difference a decade makes: Reflections on doing ‘Emancipatory’ disability research. Disability & Society, 18 (1), 3-17.

Carmona, I., Azpiroz, J., Scheuhammer, J., Welche, P. & van Isacker, K. (2010). AEGIS 2nd User forum meetings proceedings. Retrieved 25 June, 2015 from http://www.aegis-project.eu/images/docs/ID5.3.2_User_forum_v4.pdf

De Couvreur,L. & Goossens, R. (2011). Design for (every)one: co-creation as a bridge between universal design and rehabilitation engineering. CoDesign: International Journal of CoCreation in Design and the Arts, 7 (2), 107-121.

Gemou, M. & Bekiaris, E. (2010). From User Modelling to Iterative Design and Development: The AEGIS IP UCD Approach. In N. González, A. Kämäräinen, O. Kalla & I. Vélez (Eds.), Tangible Information Technology for a Better Ageing Society, pp.31-44. Jyväskylä: AGORA Center.

Gregor, P., Sloan, D., & Newell, A. F. (2005). Disability and technology: building barriers or creating opportunities?. Advances in computers, 64, 283-346.

Holone, H., & Herstad, J. (2013). Three tensions in participatory design for inclusion. In W. Mackay et al. (Eds.), Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, pp. 2903-2906. New York: ACM.

Kitchin, R. (2000). The researched opinions on research: disabled people and disability research. Disability & Society, 15 (1), 25-47.

Korn, P., Bekiaris, E., & Gemou, M. (2009). Towards open access accessibility everywhere: The ÆGIS concept. In C. Stephanidis (Ed.), Universal Access in Human-Computer Interaction. Addressing Diversity (pp. 535-543). Berlin: Springer Berlin Heidelberg.

Macdonald, S. J. & Clayton, J. (2013). Back to the future, disability and the digital divide. Disability & Society, 28 (5), 702-718.

Munteanu,C., Molyneaux, H., & O’Donnell, S. (2004). Vulnerable populations. Ethical implications for human computer interaction research. Interactions, 21 (1), 50-53.

Muller, M.J. (2009). Participatory design: The third space in HCI. In A. Sears and J. Jacko (Eds.), Human computer interaction: Development process, 165-186. Florida: CRC Press.

Ortega-Moral, M., Peinado, I., & Vanderheiden, G. C. (2014). Cloud4all: Scope, Evolution and Challenges. In C. Stephanidis and M. Antona (Eds.), Universal Access in Human-Computer Interaction. Design for All and Accessibility Practice (pp. 421-430). Cham, Switzerland: Springer International Publishing.

Sainz, F., & Bustamante, J. (2014). Aspectos éticos en la participación de personas con diversidad funcional en proyectos de investigación tecnológica. Revista Española de Discapacidad, 2 (1), 165-174.

Sainz, F., Turrero, M., González, L., & Madrid, R. I. (2014). Involucración de personas con discapacidad en proyectos tecnológicos de I+ D+ i: el caso de APSIS4all. Revista Española de Discapacidad, 2 (2), 121-144.

Sainz, F. et al. (2012). Deliverable D401.1: Cloud4all user population and UCD implementation plan. Retrieved June 19, 2015 from http://www.cloud4all.info/research/public-deliverables/d401-1-cloud4all-user-population-and-ucd-implementation-plan/

Slegers,K., Duysburgh,P., & Jacobs, A. (2010). Research methods for involving hearing impaired children in IT innovation. In A. Blandford, et al. (Eds.). NORDICHI 2010: Extending Boundaries. Proceedings of the Sixth Nordic Conference on Human-Computer Interaction (pp.769-772). New York, NY: ACM Press.

Slegers,K., Duysburgh,P., & Hendriks, N. (2015). CoDesign with people living with cognitive and sensory impairments. CoDesign: International Journal of CoCreation in Design and the Arts, 11 (1), 1-3.

TECH (Technosite), NOVA (Norwegian Social Research), & CNIPA (Italian National Center of Informatics in Public Administration) (2011). Monitoring eAccessibility in Europe: 2011 Annual Report. Retrieved March 6, 2014 from http://www.eaccessibility-monitoring.eu/researchResult.aspx.

Vines, J., McNaney, R., Lindsay, S., Wallace, J., & McCarthy, J. (2014). Designing for and with vulnerable people. Interactions, 21 (1), 44-46.

Walmsley, J., & Johnson K. (2003). Inclusive research with people with learning disabilities: Past, present and futures. London: Jessica Kingsley.




DOI: http://dx.doi.org/10.17411/jacces.v5i2.101

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