Driving inclusivity

Design needs in autonomous vehicles for people with epilepsy

Authors

DOI:

https://doi.org/10.17411/jacces.v16i2.715

Abstract

In this study, the transportation needs of people with epilepsy are considered, specifically in regard to the development of autonomous vehicles. People with epilepsy who are unable to achieve control of their seizures are not typically able to safely operate a motor vehicle, and are unable to be licensed drivers, and it is logical to believe that autonomous vehicles would be a benefit to them. However, the specific needs that people with epilepsy may have with respect to autonomous vehicles have not been examined. In this work, interviews with people with epilepsy and medical professionals involved in the treatment of epilepsy were conducted, with the goal of understanding the ways in which lower levels of autonomy might allow people with epilepsy to safely operate a motor vehicle as well as what design features might be needed in fully autonomous (Level 4 or Level 5) vehicles. As a result of this work, a roadmap of possible technological innovations and research directions is presented, with the intention of providing solutions to various challenges faced by people with epilepsy in their access to transportation.

References

Bener, A., Murdoch, J., Achan, N., Karama, A., & Sztriha, L. (1996). The effect of epilepsy on road traffic accidents and casualties. Seizure, 5(3), 215-219. https://doi.org/10.1016/S1059-1311(96)80039-2

Brinkley, J., Posadas, B., Woodward, J., & Gilbert, J. (2017). Opinions and preferences of blind and low vision consumers regarding self-driving vehicles: Results of focus group discussions. Proceedings of the 19th International ACM SIGACCESS Conference on Computers and Accessibility, (pp. 290-299). Baltimore, MD. https://doi.org/10.1145/3132525.3132532

Çamcı, G., Yakar, H., Oğuz, S., & Erdoğan, H. (2025). How do anxiety, depression, and stigma affect quality of life in people with epilepsy? Epilepsy & Behavior, 167, 110399. https://doi.org/10.1016/j.yebeh.2025.110399

Connell, B. R., Jones, M., Mace, R., Mueller, J., Mullick, A., Ostroff, E., . . . Vanderheiden, G. (n.d.). Inclusive Design Principles. (S. o. Center for Universal Design, Producer, & State University of North Carolina at Raleigh). https://humancentereddesign.org/inclusive-design/principles

Cummings, M., Li, S., Seth, D., & Seong, M. (2021). Concepts of operations for autonomous vehicle dispatch operations. Chapel Hill, NC: Collaborative Sciences Center for Road Safety. https://rosap.ntl.bts.gov/view/dot/56823

DeJonckheere, M., Vaughn, L., James, T., & Schondelmeyer, A. (2024). Qualitative thematic analysis in a mixed methods study: Guidelines and considerations for integration. Journal of Mixed Methods Research, 18(3), 258-269. https://doi.org/10.1177/15586898241257546

Guasch, D. (2023). Accessibility notes: Documentation. Universitat Politècnica de Catalunya, Acessibility Chair of the UPC. Vilanova i la Geltrú: Universitat Politècnica de Catalunya. http://hdl.handle.net/2117/358350

Hansotia, P., & Broste, S. K. (1991). The effect of epilepsy or diabetes mellitus on the risk of automobile accidents. New England Journal of Medicine, 324(1), 22-26. https://doi.org/10.1056/NEJM199101033240105

Hasegawa, S., Kumagai, K., & Kaji, S. (1991). Epilepsy and driving: a survey of automobile accidents attributed to seizure. Psychiatry and Clinical Neurosciences, 45(2), 327-331. https://doi.org/10.1111/j.1440-1819.1991.tb02481.x

Inamasu, J., Nakatsukasa, M., & Tomiyasu, K. (2019). Seizures occurring while driving in patients with and without diagnosis of epilepsy: Frequency and association with automobile accidents. Journal of clinical neuroscience, 59, 75-78. https://doi.org/10.1016/j.jocn.2018.11.003

Jacoby, A., & Austin, J. (2007). Social stigma for adults and children with epilepsy. Epilepsia, 48, 6-9. https://doi.org/10.1111/j.1528-1167.2007.01391.x

Kielmann, K. (2012). Introduction to qualitative research methodology: a training manual. Norwich, NR4: University of East Anglia.

Kumar, A., Jandial, Z., & Levy, M. (2025). NeuroPace Responsive Neurostimulation System (RNS): Progress, Challenges, and Future Opportunities for Treatment of Drug-Resistant Epilepsy. https://doi.org/10.2196/preprints.71473

Kwon, C., Liu, M., Quan, H., Thoo, V., Wiebe, S., & Jette, N. (2011). Motor vehicle accidents, suicides, and assaults in epilepsy: a population-based study. Neurology, 76(9), 801-806. https://doi.org/10.1212/WNL.0b013e31820e7b3b

Lappi, O., & Mole, C. (2018). Visuomotor control, eye movements, and steering: a unified approach for incorporating feedback, feedforward, and internal models. Psychological Bulletin, 144(10), 981. https://doi.org/10.1037/bul0000150

Lyons, J., Sycara, K., Lew, M., & Capiola, A. (2021). Human-Autonomy teaming: Definitions, Debates, and Directions. Frontiers in Psychology, 12, 589585. https://doi.org/10.3389/fpsyg.2021.589585

Mai, R., Daveron, K., Julius, A., & Mishra, S. (2025). Modeling Human-Autonomy Team Steering Behavior in Shared-Autonomy Driving Scenarios. Proceedings of the 12th IFAC Symposium on Intelligent Autonomous Vehicles. Phoenix, AZ. https://doi.org/10.1016/j.ifacol.2025.07.003

Rukasha, T., Woolley, S., & Collins, T. (2020). Wearable epilepsy seizure monitor user interface evaluation: an evaluation of the Empatica `Embrace' interface. Adjunct Proceedings of the 2020 ACM International Joint Conference on Pervasive and Ubiquitous Computing and Proceedings of the 2020 ACM International Symposium on Wearable Computers, (pp. 110-114). https://doi.org/10.1145/3410530.3414382

SAE International. (2021, April 29). J3016 -. Taxonomy and Definitions for Terms Related to Driving Automation Systems for On-Road Motor Vehicles. https://doi.org/10.4271/J3016_202104

Saldaña, J. (2021). The coding manual for qualitative researchers. London: SAGE publications Ltd.

Sultan, M., & Thomas, R. (2020). Self-driving cars: a qualitative study into the opportunities, challenges and perceived acceptability for people with epilepsy. Journal of Neurology, Neurosurgery & Psychiatry, 91(7), 781-782. https://doi.org/10.1136/jnnp-2019-322610

Tauke, B. (2019). The Evolution of Universal Design. Informationen Zur Raumentwickl, 46(5), 36-41. https://www.bbsr.bund.de/BBSR/DE/veroeffentlichungen/izr/2019/5/downloads/evolution-universal-design.pdf

Taylor, J., Chadwick, D., & Johnson, T. (1996). Risk of accidents in drivers with epilepsy. Journal of Neurology, Neurosurgery & Psychiatry, 60(6), 621-627. https://doi.org/10.1136/jnnp.60.6.621

Tomson, T., Beghi, E., Sundqvist, A., & Johannessen, S. (2004). Medical risks in epilepsy: a review with focus on physical injuries, mortality, traffic accidents and their prevention. Epilepsy research, 60(1), 1-16. https://doi.org/10.1016/j.eplepsyres.2004.05.004

Vincentini, F. (2021). Collaborative Robotics: A Survey. Journal of Mechanical Design, 143(4), 040802. https://doi.org/10.1115/1.4046238

Ziyad, S., & Ziyad, A. (2021). Emergency rapid response to epileptic seizures-a novel IOT Framework for smart cities. Scalable Computing: Practice and Experience, 22(2), 259-272. https://doi.org/10.12694/scpe.v22i2.1901

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Published

2026-11-11

How to Cite

Driving inclusivity: Design needs in autonomous vehicles for people with epilepsy. (2026). Journal of Accessibility and Design for All, 16(2), 1-15. https://doi.org/10.17411/jacces.v16i2.715